Years ago when my oldest was small, I stumbled across an organization called the Alle Shea project. They fundraise money for the OI Foundation, but also send out snuggle buddy packages to OI kids all over the world. So if a child is receiving treatment, admitted to the hospital or recovering at home the lovely people at this organization will send out a package for them!!!
They do this in remembrance of their firstborn daughter named Alle Shea! She was born with osteogenesis imperfecta type 2. Type 2 is the most severe & unfortunately she lost her battle 5 weeks later.
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